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Son of Lorenzo's oil creators dies at 30

Odone was the subject of the film 'Lorenzo's Oil'
May 31, 2008 12:00:00 AM PDT
The man whose battle for life was told in the movie "Lorenzo's Oil" has died at his Virginia home. Lorenzo Odone, whose parents refused to give up the battle against the boy's nerve disease, died Friday, just one day after his 30th birthday. Doctors had predicted Lorenzo Odone would die in childhood. Lorenzo's father, Augusto says his son recently got food stuck in his lungs.

Lorenzo was diagnosed at age 6 with ALD (adrenoleukodystrophy) and doctors told his parents the disease would lead to their son's death in two years.

A study published in 2005 showed that an oil treatment patented by Augusto Odone can prevent onset of symptoms for most boys diagnosed with ALD.

Odone plans to take his son's ashes to New York to mix them with the ashes of his wife, who died in 2000.

 

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