WASHINGTON Lorenzo Odone, whose parents refused to give up the battle
against the boy's nerve disease, died Friday, just one day after his
30th birthday. Doctors had predicted Lorenzo Odone would die in
childhood. Lorenzo's father, Augusto says his son recently got food
stuck in his lungs.
Lorenzo was diagnosed at age 6 with ALD (adrenoleukodystrophy)
and doctors told his parents the disease would lead to their son's
death in two years.
A study published in 2005 showed that an oil treatment patented
by Augusto Odone can prevent onset of symptoms for most boys
diagnosed with ALD.
Odone plans to take his son's ashes to New York to mix them with
the ashes of his wife, who died in 2000.
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